As we close out this first cycle, I immediately jump into preparing for what’s to come!
Here is what I have on the docket:
- Thursday, Friday and Monday of this week into next I will continue to monitor white blood counts and get an injection when my ABS Neutrophils are below 1.4.
- Next Tuesday (9.17) I will get my blood drawn again to see where my levels are. I am assuming that if they appear within a certain range, I will plan to start my treatments on 9.24. If they are are still coming in below 1.4, I will perhaps continue on the injections to give it my best efforts at starting in 2 weeks!
- Next cycle/phase will be determined by my blood counts on 9.24! So, for those who have me on their prayer lists I am needing you now! Pray that my counts can return to a “good” range and that I can indeed start in 2 weeks rather than 3! The momentum is good, and I am anxious to get this started. The sooner I start, the sooner it can be behind me.
What I am being told to expect: more drastic side effects than this first cycle. Nausea and fatigue will be more prominent and will increase with each cycle. We know I am not great at “BEING STILL” so I am going to stay as present as I can work through each week as it comes.
What and how can I prepare: stay healthy, rest when I can and continue to be mindful and mentally prepared for each appt to come.
This phase will consist of 4 cycles, 1 every three weeks. (essentially 1x per month) allowing the time in between to rest and let my body heal. More details to come once I confirm when I will start this phase. The planner in me is losing my mind as I want to start planning and understanding what will go into each cycle. I am also struggling to know just how my body will react. Will it be as bad as I am being told? Will I be incapacitated to the point where I will miss things with the kids? Will they notice a difference? I want to be strong, but I also want to allow myself to work through each stage and be mentally present to what my body needs. Will I be able to sleep or will I sleep so much I can’t get out of bed? All of the questions no one can answer and I just need to wait and see. Waiting- lol I am so NOT great at that.
Until I know more come next week or the 24th….
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Positive thoughts and energy continue to be sent your way. I know first hand, your battle is not an easy one. In reading your posts I can tell you have much inner strength. Pull from that and continue to fight your fight. You seem to have an amazing support system around you, rely on them to help you as much or as little as you need. If there is anything I can do for you, please reach out. Praying for you and your family.